Patient and Family Education

Visiting Tips from a Dementia Patient

     In the early stages of my illness, I know something is wrong, but I am unable to identify the cause and feel helpless to fix it.  As a result, I can become frustrated, angry  and confused.

     During the visit, try not to ask me too many questions.  I may not be able to accurately remember the answers and may become frustrated.  I may know the answer, but you can’t understand the words I’m using.

     Please treat me as the adult I am when choosing your words and tone of voice.  Never argue with me if I think you are someone you are not.

     Do have conversations with me, even if I don’t talk.  Tell me your name again, tell me you are glad to be with me, tell me the weather.  Show me my photo albums, play my favorite music.  You may have done some of these things many times before, but to me it’s familiar and comforting, whether I can express that to you or not.

     When it’s time to leave me, please go quickly and without much ado.  Tell me you have enjoyed our time together.  A hearty good bye may make me anxious and I may want to go too.  Then, your departure will cause me confusion and distress.

From National Hospice and Palliative Care Association

Preparation:

Caring for someone at the end of life can be both very challenging and very rewarding. The gifts of your presence, time, and undivided attention are usually the most important you can give. Remember, you need care too. Make a list of things you need so when loved ones ask what they can do you are ready.

If you have any other questions, don’t hesitate to Click here and Contact Us!

Safety Tips:

– Remove scatter rugs to prevent trips and slips.

-Remove obstacles from frequently traveled paths (such as the bathroom).

-Place grab bars in the tub and next to the commode.

-Use raised toilet seats and non-skid shower seats.

-Be sure emergency contact numbers (Hospice-563-652-0123) are posted prominently.

-Practice good hand-washing routines before and after providing hands-on care.

-Be sure to tell your hospice nurse or other staff member of any safety concerns you may have.